No arrangements with patients
Corlife cannot discuss the provision of a cell-free allograft directly with you. There are good reasons for this:
- We are not clinicians and, as such, cannot judge whether a cell-free allograft is the right treatment for you;
- For the most part, the tissue banks providing the donated allograft decide on where the cell-free allograft is allocated.
At present, it is unfortunately not possible to meet the current demand for cell-free allografts, even where the treatment is deemed appropriate and necessary. Each cell-free allograft is dependent on a tissue donation. The timing of the tissue donation and geometry of the allograft must fit for the recipient. Other factors, including regulatory issues beyond our control, can also play a role. For this reason, we reserve the right to decide against providing a cell-free allograft where we consider this to be the right decision.
National Patient Organisations
We understand that you may be in a situation of great concern and uncertainty. For example, we are aware that cell-free allografts are not regularly reimbursed in some countries which can result in a case of hardship for individual patients. We fully understand patients’ need for support and take our responsibility seriously. However, assessing your situation and providing help in individual cases exceeds our competence, our authority, and our financial means. For this reason, we recommend that you contact your national patient organisations via ECHDO.eu (for further details, please visit www.echdo.eu/echdo-members).